Thursday, 7 February 2013

New update!

Dear Diary,
Over the past few days, I have been working on spreading awareness of EDS. First, I have just been sharing links to my friends and family. Hopefully I can reach a further audience to spread the word even more. 
So now, I have this diary blog, my Facebook group and now my new Facebook page. With having a page, it means that my posts can be posted straight to peeps Facebook feed walls meaning it is more open. I also use Twitter still which I love. 
The page will keep all of my fundraising projects progress as it happens. If you have EDS, or any thing similar or know someone who will be interested, tell them to click 'like' and also share. The more people know about EDS, the better. 
To those of you have done your part so far, then a huge thank you from me! 
I have been rather tired today, in fact I have slept a lot so haven't managed to do much at all. My knee has been particularly sore again so have had to rest it. I have to go to the hospital twice the week after for Hydro and a follow up appointment with Sally about my finger splints. Woo that means I get to have dinner at the hospital restaurant on the Friday before Hydro :D I love it! 
You may also have noticed that I have been posting more in my group, as I am wanting to feel closer to my followers and treat it like a proper diary for any random thoughts or questions etc. I hope you don't mind and can keep up with all of my different places, just like technology, we have to somehow try to keep up, ha ha! Don't worry, I won't go too fast ahead. You all know that I prefer to do things at my own pace and I'm sure you do too.
Keep smiling! xxx

Ps. There's me on here, 
there's me on 'Little Miss DinkyKt's Video Diary - Ehlers-Danlos Syndrome' on Facebook,
 on Twitter I'm @DinkyKt 
and now on 'Dinkykt's EDS Diaries' on Facebook. 

Tuesday, 5 February 2013

Listen to your body.

Dear Diary,
Sorry I haven't wrote to you for a few days. I have just been taking a bit of time out to myself at home with my family. Last week, I felt unwell and was in some pain. You would like to know that I feel a lot better this week. It's just nature ha ha! 
Today I have mostly slept, I've realised that I can go out and do something for a day or two then it tires me out completely. This cold weather doesn't help either. It is funny how you notice a pattern but it's good because you see how your body copes and works. It is important to listen to your body. 
Over the last few days, I have noticed that I've been getting more pain in my right shoulder again. It seems to flare up every now and then. It compensates for me not being able to use my left had as well as it being my good arm. I use it to bounce myself up when I fall into the wall. The weather and over-use aggravates the arthritis so I have to remember to go easy with it. 
This week, I have been looking at venues for my fundraising event and hopefully tomorrow, I will make my decision. 
Anyway, I'm off now so keep smiling and take care. xxx