Sunday 30 September 2012

Ramblings of introducing oneself to diary...

Dear Diary,
 
This is my first diary post in this blog. I'm Katie and I'm twenty-seven years old. I live in South Cumbria and I have pretty much lived here all of my life.
This aim of this diary is to write down my experiences of living with a rare condition and write an honest insight into it to help raise awareness. I'm getting to the stage where it has started to affect me more so with chronic pain and I feel there should be more done to raise awareness not only to the general public but also to the medic profession.
I think in everything I've written about my E.D.S previously, I have somehow skirted round how it really affects me, maybe I thought people wouldn't want to read something so personal or whatever the reason, I'm not sure of. Some people it is a case of 'everybody wants to talk about a freak, no one wants to dig that deep' I can't explain why this is like this for some people, maybe it is embarrassment or feel they are prying into something they don't know about...
I have made a few videos talking about what E.D.S is so please feel free to venture to watch them. Over the course of these diary posts, I am sure you will get to understand more about EDS thoroughly better than explaining it in medical terms.
I hope you find whatever it is you are hoping to gain from reading my diary posts and please bear with me as you will understand it isn't always rosy living with this condition.
 
This is a link to my Facebook page...
 
This is a link to my YouTube videos...
 
This is a link to my other blog which has random topics such as what I've been up to ecetera...
 
Thank you for taking the time to read this and I hope you will stay with me...